Posts filed under 'PKU'

Squirty Cream

Friday? Well good day all in all, was meant to cycle over the downs to Jevington for a beer or two but spent a considerable amount of time making up a front brake for my bike. After welding certain parts together we decided in the end just to use an angled bit of steel with a couple of hole drilled in it. Does the business now, thanks to Cam and Adam… So with little time left we cycled down to the British Queen for a pint or two, I tried this cider called Old Rosie at 7.3% abv and got quite merry to say the least. Evening was a good laugh, I went out with a coachload of Firemen on a Stag doo to Brighton, the groom was dressed on a pink vest top and a nappy with a huge baby bottle for his beer, laced occasionaly with the odd Viagra. Started off at the station, lots of beer on offer, after that cider in the afternoon I decided to pace myself and onto a coach off to Brighton. There were two strippers for the man, seemed the Viagra had no effect, either that or he was getting into the Brighton mood and turned Gay.I reckon the strippers were more embarrased than the groom who was absolutely loving it! Coupla beers and lots of squirty cream later we moved on, where to I don’t know, frequented severeral establishments of refreshment before settling down at a club I believe was called Creations, which was quite good, I was on water by now as I was being responsible and didn’t want to pass out and get gang raped by the male population. Not fair actually, I met some real nice guys on the night and definately not poofters. I’m not at all homophobic as long as they don’t try and shag me! Fell asleep for most of the journey home threw up and off to bed birds singing and warmish sunshine.

Hmmm…I feel a sense of insomnia overcoming me, so I’m back with an update, actually bugger all has happened since the last entry except I’ve drunk a can of Guinness, woohooo! Wierd I actually fancy a fag but I haven’t got any…never mind, I’m not really a smoker anyway, people who know me will know that I may spark up with a beer in my hand but thats it, strangley I do not crave unless I drink so giving up would be a doddle and may even cap some of my bingeing habits. But there’s another story, need to set a date to begin the PKU diet, it is tough…very tough so I need to be absolutely sure its what I need to be able to accomplish it long term. Thinking of the protein foods I enjoy that I would have to give up include Fish, Angel’s Makerel in particular 😉 Polish sausage, yum, Kabanos, Zwyeska (I’m sure there is an “i” in there somewhere?) I do not eat alot of meat, so all your Sunday roast faves wouldn’t be an isssue. Cheese not bothered, I like some Danish Blue or Mycella, another blue cheese I believe is French, but again not what I would class as something I would miss being on diet. Hmmm… some green leafy stuff I need to have to weigh, I could make a vegetable casserole using free (of protein) veg and scoff it till it pours out my nostrils…but some vegetables contain a significant amount of protein that has to be considered and therefore it has to weighed. Potatoes, Spring Greens, Runner Beans, Peas, Spinach, Sweetcorn, Mange Tout, Sugar Snaps all contain protein that has to be taken into consideration. Root veges tend to be low protein, exception being potatoes. Of course there is fruit, nearly all fruit is very low protein and hence is free on the diet, bananas (have said this far too often) need to be weighed. I think most fruits are free in moderation, not to say that they are protein free but a normal serving is considered not worth adding to the intake. Having said all this I’ve had a few questions for the dietician in London about so called freee foods that infact are quite high in protein, for instance, a tin of tomatoes contain approximately 5 grammes of protein, which is one third (33%) of the daily allowance for most on diet PKU patients, but it is published as a free food. Why is this? I asked the very same question to the people right at the top in PKU England and had no answer. Orange juice is another one that is free but has significantly high level protein content. Why am I writing all this shit? Maybe this can be the subject for Lemsworld.com, PKU why not and have a forum for sufferers of the disease, yes that seems a good idea. Lets face it I know quite a bit about the subject having been subjected to it all my life… Thats it, now I’ve put that idea in my head I will not be sleeping at all tonight, but maybe I could actually make a difference you never know. What a very long and boring entry, sorry about that, but I’ve got sod all else to do.

1 comment July 15th, 2006

Phenylketonuria Fuelled Mayhem

This is it! I’m quite surprised that I am still reasonably happy in consideration. I may even kick off my diet for phenylketonuria (there’s one for the search engines) soon, I have been in touch with the dieticians at the University College Hospital in London and need to book an appointment with the Consultant who I beleive is still Dr. Lee, only then will I revert to a Rabbit like diet. In fact a Rabbit’s diet is probably more varied but they dont get any of it from the NHS.

Yesterday I caught the sun a bit, cleared a load of stuff from Chains garden and took it down the tip, then entertained myself sitting on the patio in the sun watching Chain’s amazing carpentry interpretation. In other words a door that didn’t fit. Thought I’d give a hand for 5 minutes before nodding off in the sunshine again. Angel made us a lovely bit of fresh Makerel and salad, thanks Hun x Then I poppped to my local for a game of pool, won a few lost a few. I met Rhys, who is Luke’s Brother, Luke is the guy who had the car accident, I spoke to him about it and his general answer was, “We are all coming to terms with it,” which upset me a bit because that means that Luke is either not going to make it or, he is going to be severley affected by it. I have also had word from Bluewatch who were there on the scene to cut him out and the injuries sounded horrific, I really feel for the guy and his family, they are the salt of the earth and surely didn’t deserve this…

Anyway on a lighter note, I’m off for a bike ride over downs today with a coupla mates and lunch at the Eight Bells in Jevington, when I say bike ride I mean off road not cycling in tartan socks along a cobbled street waving to passers by. I love it but I don’t have a front brake so will have to take it easy. Nothing else of interest really, except I’ve had about 5 mugs of coffee in the last hour and beginning to get a bit hyper…..

Add comment July 14th, 2006

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